iCARE-PD: Integrated Parkinson Care Networks

The iCARE-PD project proposes a paradigm shift in Parkinson Disease care from an (in)outpatient care to home-based and community-centred health care based on integrated care, self-management support and technology-enabled care following a patient-centred approach. The iCARE-PD project are conceived as a form of experience-based design involving patients, caregivers and healthcare providers and allowing each stakeholders to share their stories and prioritize issues for improvement, and collaboratively “co-design” a home/community-based care delivery model (Bate & Robert, 2006, 2007; Donetto et al., 2015; Iedema et al., 2010). A Co-design approach is not only a technique to gather input, but a holistic approach that entails multiple steps through which patients and care partners are considered as full-fledge partners (Smith, Bossen & Kanstrup, 2017).

The main purpose of the co-design approach is to create a collaborative partnership with the people destined to use services or eHealth technologies (Grosjean et al., 2019; Bjerkan et al., 2015). In our project, the Co-Design Approach involves different forms of dialogue with the participants such as narrative interviews or Participatory Design workshops (Gregory, 2003; Simonsen & Robertson, 2012). For example, the outcome of applying this approach is a better understanding of how human, social and organizational factors affect the ways that eHealth technologies will be designed and used (Berg, 1999; Reddy et al., 2002; Ackerman et al., 2018).

S. Grosjean and Luc Bonneville are collaborating on this international project led by Dr. Mestre (Ottawa Hospital). With the help of the CTI-Lab, we are coordinating the working group on the co-design approach (Cutting Group #1 – CCG Co-Design).

For more information about the co-design approach and the iCARE-PD project contact: sylvie.grosjean@uottawa.ca

Keywords eHealth; co-design; Parkinson; Integrated Care; eCARE-PD platform